The Importance Of Advocacy Groups For Orphan Drug Development

The Importance of Advocacy Groups for Orphan Drug Development

Rare Disease Report

The Evolution of Patient Advocacy Groups in Orphan Drug Development

Premier Research

Patient Advocacy and Orphan Drug Development

Rare Disease Report

Patients Matter: FDA’s Office of Orphan Products Development Grants Programs

U.S. Food and Drug Administration

How do you see the role of patient advocacy groups? How could they be more effective?

Premier Research

NORD, the Orphan Drug Act, and role of rare disease patient advocacy - Video abstract 41070

Dove Medical Press

Importance of Patient Advocacy Groups in Developing Treatments

The Role of Advocacy Groups in Cystic Fibrosis Drug Development

Pharma Needs Patients and Patients Need Pharma to Develop Orphan Drugs

Rare Disease Report

The Importance of Advocacy Groups for Rare Disease Patients

Advocacy Groups Help Pharma Develop Clinical Trials

Rare Disease Report

The Powerful and Evolving Role of Patient Advocacy Groups in Clinical Research

Premier Research

Advice to New Patient Advocacy Group

Rare Disease Report

Rare Disease Drug Development and Patient Centricity

Meet the Authors: Orphan Drug Development for Rare Diseases

Regulatory Affairs Professionals Society

Patients are Essential to Orphan Drug Development and Approval

Rare Disease Report

How Can Patients and Advocates Help Accelerate Drug Development?

National Organization for Rare Disorders (NORD)

RARE Drug Development Symposium: Working with Advocacy Groups

Global Genes - Allies in Rare Disease

Harald Heemstra PhD - Innovation, Patient Involvement & Orphan Drug Development

Orphan Drugs Conquering Rare Diseases One-by-One

The Balancing Act